Newsletter May 2013

Welcome to the May edition of RISA News. Its contains lots of great information, feedback from our conference and notice of our June AGM. It also contains, as always, personal stories, book reviews and recipes.

What every reflux parent needs to know about a medication wean

When you stop using a proton pump inhibitor (PPI) a spike in stomach acid production is inevitable. That’s right, inevitable. So your child will very likely be in pain. This does not necessarily mean that the wean has failed. You need to consider pain management for the duration of the wean which could be several weeks. Talk to your doctor about appropriate pain management during this time.

Here’s why: the body will produce a hormone to tell the body to start producing acid again. The acid needs to reach a certain level before the body will realise it can stop and levels will normalise. In the meantime, you need to expect that stomach acid production will be a bit haywire.

RISA 2013 Conference Report

On 20 April this year, RISA held its inaugural conference for 220 healthcare professionals (HCPs). It was an outstanding success. Despite some of our volunteers pouring their heart and souls into it, they were struck down with illness so we had a smaller number of volunteers on the day than we’d planned, but it went really smoothly with lovely feedback about the organisation of the day.

Top 20 Things Not to Say to a Reflux Parent

All babies cry you know. All babies vomit you know. Is this your first? He’s feeding off your stress. But she seems so happy. Oh my baby used to vomit all the time too! But he’s a healthy weight? Don’t worry! They grow out of it. You need to stop breastfeeding / have...

RISA Forum Survey

Recently, RISA’s admin group have been trialling a private facebook group to see how it would work if RISA were to provide this service to members in addition or as a replacement to our current forums. We would be extremely grateful if you would spend only a couple of minutes filling in the attached survey (10 questions, mostly yes/ no). We’re seeking input from members and non-members, here:

The Need for Education

There are good reasons to be better educated about paediatric GORD.

Paediatric gastroenterology is a relatively young speciality. What is being learned about the causes of GI issues in children, like many areas of human learning, is moving faster than ever before. The pace of knowledge acquisition is astounding. An understanding of and solutions for issues that have plagued families for centuries are now very close to our fingertips. More of what these wonderful specialists know needs to be heard by the general health care profession.

President’s Opening Address to the 2013 RISA Conference

Welcome to the Reflux Infants Support Association’s inaugural conference. “Gastroesophageal Reflux Disease” is quite a mouthful so please excuse the “reflux” abbreviation.

I’m Joanne Matthews, and I’m proud to be the National President of this wonderful organisation. We started in 1982 as the less than glamorous “Vomiting Infants Support Association” but the mission’s pretty much remained the same – to help parents deal with the hell-on-earth caused by a child born with severe gastro-intestinal issues. We’ve always been exclusively run by volunteers and almost entirely funded by memberships. And now we’re branching out a bit by trying to help the experts bring their knowledge and wisdom to you – the front line in care of infants and children. I cannot thank you enough for your attendance. We really believe it will make a difference to the lives of thousands of families.

Conference presentations – 2013

If you weren’t able to make it to the 2013 conference but would like to see the presentations, they are available for access via a private youtube channel for a nominal fee! The quality of information is extraordinary. The information is provided at a nominal cost to cover the cost of filming on the day.