RISA says there is a need for better diagnostic guidelines for infant reflux and improved emotional and psychological support for parents, as a delay in diagnosis of infant reflux could often cause further health problems for young children, including feeding and speech issues. Parents midst of an infant reflux struggle, are urged not to give up.
Read our outgoing President’s report.
In June 2016, the Reflux Infants Support Association surveyed more than 500 parents about their experience caring for an infant with gastro-oesophageal reflux disease (GORD) in the first twelve months of life. The results were concerning:
The word reflux means to flow back or return; ‘gastro’ is a term related to the stomach; and ‘oesophageal’ relates to the oesophagus (food pipe). Following this, the term ‘gastro-oesophageal reflux’ is where stomach contents (comprising food and stomach acid) flow back into the oesophagus.
Silent reflux can be very confusing; there may be no obvious signs of gastro-oesophageal reflux (such as vomiting) and the child generally isn’t ‘silent’. Silent reflux refers to refluxed material that flows back into the oesophagus, but isn’t forced out of the mouth.
RISA put out a survey in June 2016 to get a better understanding of the impact of infant reflux on people’s lives. The response was overwhelming. Families everywhere wanting to contribute hoping that their stories might make things better for other families if someone in authority could hear and see what they’d been through.
Would you like to meet other parents of children suffering from reflux?